Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal

Café, ACarvalho, MCrato, MFaria, MKjollerstrom, POliveira, CPinto, PRSalvado, RDos Santos, AASilva, C2021-05-272021-05-272019Orphanet J Rare Dis . 2019 Sep 4;14(1):211.http://hdl.handle.net/10400.17/3701Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.engAdolescentChildChild, PreschoolFemaleHealth Care CostsHemophilia AHumansInfantInfant, NewbornMalePortugalQuality of LifeQuality-Adjusted Life YearsRare DiseasesSurveys and QuestionnairesHDE HEM PEDHaemophilia A: Health and Economic Burden of a Rare Disease in Portugaljournal article10.1186/s13023-019-1175-5