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Access to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differences

2020Journal article Open access
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dc.contributor.authorHimmelmann, K
dc.contributor.authorPåhlman, M
dc.contributor.authorAndersen, GL
dc.contributor.authorVik, T
dc.contributor.authorVirella, D
dc.contributor.authorHorridge, K
dc.contributor.authorNeubauer, D
dc.contributor.authorArnaud, C
dc.contributor.authorRackauskaite, G
dc.contributor.authorde la Cruz, J
dc.date.accessioned2021-05-27T07:38:14Z
dc.date.available2021-05-27T07:38:14Z
dc.date.issued2020
dc.description.abstractAim: The aim is to study access to intrathecal baclofen (ITB) for children with cerebral palsy (CP) in Europe, as an indicator of access to advanced care. Methods: Surveys were sent to CP registers, clinical networks, and pump manufacturers. Enquiries were made about ITB treatment in children born in 1990 to 2005 by sex, CP type, level of gross motor function classification system (GMFCS) and age at the start of treatment. Access to ITB was related to the country's gross domestic product (GDP) and % GDP spent on health. Results: In 2011 population-based data from Sweden, Norway, England, Portugal, Slovenia, and Denmark showed that 114 (3.4%) of 3,398 children with CP were treated with ITB, varying from 0.4 to 4.7% between centers. The majority of the children were at GMFCS levels IV-V and had bilateral spastic CP. In Sweden, dyskinetic CP was the most commonly treated subtype. Boys were more often treated with ITB than girls (p = 0.014). ITB was reported to be available for children with CP in 25 of 43 countries. Access to ITB was associated with a higher GDP and %GDP spent on health (p < 0.01). Updated information from 2019 showed remaining differences between countries in ITB treatment and sex difference in treated children was maintained. Conclusion: There is a significant difference in access to ITB for children with CP across Europe. More boys than girls are treated. Access to ITB for children with CP is associated with GDP and percent of GDP spent on health in the country.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationNeuropediatrics . 2020 Apr;51(2):129-134pt_PT
dc.identifier.doi10.1055/s-0040-1701659pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.17/3704
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherThiemept_PT
dc.subjectAdolescentpt_PT
dc.subjectBaclofenpt_PT
dc.subjectCerebral Palsypt_PT
dc.subjectChildpt_PT
dc.subjectChild, Preschoolpt_PT
dc.subjectEuropept_PT
dc.subjectFemalept_PT
dc.subjectGross Domestic Productpt_PT
dc.subjectHealth Care Surveyspt_PT
dc.subjectHealth Expenditurespt_PT
dc.subjectHealth Services Accessibilitypt_PT
dc.subjectHumanspt_PT
dc.subjectInjections, Spinalpt_PT
dc.subjectMalept_PT
dc.subjectMuscle Relaxants, Centralpt_PT
dc.subjectHDE NEU PEDpt_PT
dc.titleAccess to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differencespt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage134pt_PT
oaire.citation.issue2pt_PT
oaire.citation.startPage129pt_PT
oaire.citation.titleNeuropediatricspt_PT
oaire.citation.volume51pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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