Publication
Does Reality Overcome the Expected? Survey on Informal Caregivers' Profile: A Nurse-Led Study in Times of COVID-19
| dc.contributor.author | Henriques, MA | |
| dc.contributor.author | Loura, DS | |
| dc.contributor.author | Nogueira, P | |
| dc.contributor.author | Melo, G | |
| dc.contributor.author | Gomes, I | |
| dc.contributor.author | Ferraz, I | |
| dc.contributor.author | Viegas, L | |
| dc.contributor.author | Costa, A | |
| dc.date.accessioned | 2022-12-29T15:36:06Z | |
| dc.date.available | 2022-12-29T15:36:06Z | |
| dc.date.issued | 2022 | |
| dc.description.abstract | The increasing overload of chronic conditions raises challenges for the health system. Informal caregivers have a major role in ensuring the quality of life of the cared-for person, despite the reported lack of working resources which can lead to unmet needs. This article reports on the first part of a nurse-led research project entitled “Informal caregiver’ profiles in Lisbon county: a health community approach.’ We aimed to support decision-making by developing an informal caregiver profile to promote tailored interventions. A survey addressing the dyad was developed and submitted to a convenient, network-based, stratified sample of carers aged 18 years or above. More than thirty community partners supported the identification of caregivers. Data were submitted to univariate descriptive analysis. A profile of the cared-for person and the informal caregiver was uncovered by identifying 639 caregivers, of whom the majority lived with the cared-for person. Only four percent planned the transition to a caregiver role, and no more than 10% had access to support programs. Approximately half of the respondents found that COVID-19 negatively impacted their performance in the caregiver role. Developing a local and tailored strategy with collaboration between healthcare professionals, academics, and community partners is key to ensuring that meaningful support is provided to caregivers. | pt_PT |
| dc.description.version | info:eu-repo/semantics/publishedVersion | pt_PT |
| dc.identifier.citation | Int J Environ Res Public Health . 2022 Sep 10;19(18):11394 | pt_PT |
| dc.identifier.uri | http://hdl.handle.net/10400.17/4347 | |
| dc.language.iso | eng | pt_PT |
| dc.peerreviewed | yes | pt_PT |
| dc.publisher | Multidisciplinary Digital Publishing Institute (MDPI) | pt_PT |
| dc.subject | Informal caregivers | pt_PT |
| dc.subject | Nursing | pt_PT |
| dc.subject | Survey | pt_PT |
| dc.subject | Health profile | pt_PT |
| dc.subject | Community | pt_PT |
| dc.subject | HDE PED | pt_PT |
| dc.title | Does Reality Overcome the Expected? Survey on Informal Caregivers' Profile: A Nurse-Led Study in Times of COVID-19 | pt_PT |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.citation.issue | 18 | pt_PT |
| oaire.citation.startPage | 11394 | pt_PT |
| oaire.citation.volume | 19 | pt_PT |
| rcaap.rights | openAccess | pt_PT |
| rcaap.type | article | pt_PT |