Publication
Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
| dc.contributor.author | Café, A | |
| dc.contributor.author | Carvalho, M | |
| dc.contributor.author | Crato, M | |
| dc.contributor.author | Faria, M | |
| dc.contributor.author | Kjollerstrom, P | |
| dc.contributor.author | Oliveira, C | |
| dc.contributor.author | Pinto, PR | |
| dc.contributor.author | Salvado, R | |
| dc.contributor.author | Dos Santos, AA | |
| dc.contributor.author | Silva, C | |
| dc.date.accessioned | 2021-05-27T07:19:52Z | |
| dc.date.available | 2021-05-27T07:19:52Z | |
| dc.date.issued | 2019 | |
| dc.description.abstract | Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal. | pt_PT |
| dc.description.version | info:eu-repo/semantics/publishedVersion | pt_PT |
| dc.identifier.citation | Orphanet J Rare Dis . 2019 Sep 4;14(1):211. | pt_PT |
| dc.identifier.doi | 10.1186/s13023-019-1175-5 | pt_PT |
| dc.identifier.uri | http://hdl.handle.net/10400.17/3701 | |
| dc.language.iso | eng | pt_PT |
| dc.peerreviewed | yes | pt_PT |
| dc.publisher | BMC | pt_PT |
| dc.subject | Adolescent | pt_PT |
| dc.subject | Child | pt_PT |
| dc.subject | Child, Preschool | pt_PT |
| dc.subject | Female | pt_PT |
| dc.subject | Health Care Costs | pt_PT |
| dc.subject | Hemophilia A | pt_PT |
| dc.subject | Humans | pt_PT |
| dc.subject | Infant | pt_PT |
| dc.subject | Infant, Newborn | pt_PT |
| dc.subject | Male | pt_PT |
| dc.subject | Portugal | pt_PT |
| dc.subject | Quality of Life | pt_PT |
| dc.subject | Quality-Adjusted Life Years | pt_PT |
| dc.subject | Rare Diseases | pt_PT |
| dc.subject | Surveys and Questionnaires | pt_PT |
| dc.subject | HDE HEM PED | pt_PT |
| dc.title | Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal | pt_PT |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.citation.issue | 1 | pt_PT |
| oaire.citation.startPage | 211 | pt_PT |
| oaire.citation.title | Orphanet journal of rare diseases | pt_PT |
| oaire.citation.volume | 14 | pt_PT |
| rcaap.rights | openAccess | pt_PT |
| rcaap.type | article | pt_PT |
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