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Authors
Advisor(s)
Abstract(s)
Every month we see to be published dozens of scientific papers about etiology and physiopathology of CP, imaging, treatment, survival, quality of life of patients and of mothers (just a few) and so on. Papers dealing with the feelings and the problems of siblings of children and adults with CP in the most important scientific journals are extremely rare.
However in internet we can find the sites of the most important Cerebral Palsy Societies, like the British, the Australian and the American ones already devoting a special attention to the issue of siblings; we also can see several interesting blogs of parents sharing their experiences not only with the handicapped child but also with the siblings, even counseling some books written for children giving practical advices how to deal and live with a handicapped sibling.
What was a surprise to me were the several sites of adults having a disabled sibling, frequently with CP, in a new situation: without parents to care them.
Description
Keywords
Paralisia Cerebral Gémeos Cuidados Parentais HDE NEU PED
Citation
IN: Reunião conjunta da Associação Catalã de Paralisia Cerebral e da International. Cerebral Palsy Association “Parents, professionals and adults with cerebral palsy working together”; 2011, 18, 19, 20 de Novembro. Barcelona, Espanha
Publisher
Serviço Neurologia, Hospital de Dona Estefânia, Centro Hospitalar de Lisboa Central, EPE