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The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET

dc.contributor.authorTalarico, R
dc.contributor.authorAguilera, S
dc.contributor.authorAlexander, T
dc.contributor.authorAmoura, Z
dc.contributor.authorAntunes, A
dc.contributor.authorArnaud, L
dc.contributor.authorAvcin, T
dc.contributor.authorBeretta, L
dc.contributor.authorBombardieri, S
dc.contributor.authorBurmester, G
dc.contributor.authorCannizzo, S
dc.contributor.authorCavagna, L
dc.contributor.authorChaigne, B
dc.contributor.authorCornet, A
dc.contributor.authorCostedoat-Chalumeau, N
dc.contributor.authorDoria, A
dc.contributor.authorFerraris, A
dc.contributor.authorFischer-Betz, R
dc.contributor.authorFonseca, J
dc.contributor.authorFrank, C
dc.contributor.authorGaglioti, A
dc.contributor.authorGaletti, I
dc.contributor.authorGrunert, J
dc.contributor.authorGuimarães, V
dc.contributor.authorHachulla, E
dc.contributor.authorHoussiau, F
dc.contributor.authorIaccarino, L
dc.contributor.authorKrieg, T
dc.contributor.authorLimper, M
dc.contributor.authorMalfait, F
dc.contributor.authorMariette, X
dc.contributor.authorMarinello, D
dc.contributor.authorMartin, T
dc.contributor.authorMatthews, L
dc.contributor.authorMatucci-Cerinic, M
dc.contributor.authorMeyer, A
dc.contributor.authorMontecucco, C
dc.contributor.authorMouthon, L
dc.contributor.authorMüller-Ladner, U
dc.contributor.authorRednic, S
dc.contributor.authorRomão, V
dc.contributor.authorSchneider, M
dc.contributor.authorSmith, V
dc.contributor.authorSulli, A
dc.contributor.authorTamirou, F
dc.contributor.authorTaruscio, D
dc.contributor.authorTaulaigo, A
dc.contributor.authorTerol, E
dc.contributor.authorTincani, A
dc.contributor.authorTicciati, S
dc.contributor.authorTurchetti, G
dc.contributor.authorvan Hagen, P
dc.contributor.authorvan Laar, J
dc.contributor.authorVieira, A
dc.contributor.authorde Vries-Bouwstra, J
dc.contributor.authorCutolo, M
dc.contributor.authorMosca, M
dc.date.accessioned2023-08-17T14:29:52Z
dc.date.available2023-08-17T14:29:52Z
dc.date.issued2021-03
dc.description.abstractDuring the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationNat Rev Rheumatol . 2021 Mar;17(3):177-184.pt_PT
dc.identifier.doi10.1038/s41584-020-00565-zpt_PT
dc.identifier.urihttp://hdl.handle.net/10400.17/4644
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherNature Publishing Grouppt_PT
dc.subjectHCC DAUTOIMpt_PT
dc.subjectCOVID-19 / epidemiology*pt_PT
dc.subjectComorbiditypt_PT
dc.subjectHumanspt_PT
dc.subjectConnective Tissue Diseases / epidemiology*pt_PT
dc.subjectConnective Tissue Diseases / therapypt_PT
dc.subjectDelivery of Health Care / organization & administration*pt_PT
dc.subjectPandemics*pt_PT
dc.subjectSARS-CoV-2*pt_PT
dc.titleThe Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNETpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage184pt_PT
oaire.citation.issue3pt_PT
oaire.citation.startPage177pt_PT
oaire.citation.titleNature Reviews Rheumatologypt_PT
oaire.citation.volume17pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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